We always seem to learn facts from those amongst us who may be deafblind but never experience it for ourselves, in order to be able to understand and relate in full. Therefore, here is a particular albeit very new experience of mine because, seeing is believing…
Without delving into the medical side of things for privacy reasons, I am once again unbelievably grateful for the NHS today. Without them, every one of us would have a very different story to tell. Having been born deaf into a deaf family, I was also exposed to people who happened to be deafblind which meant I never really took my eyesight (or anything else!) for granted. I know from not just my own experience but also others too, just how incredibly scary it can be, realising and seeing how quickly an organ thus relatively a life can deteriorate. It can be as sudden as a blink of an eye.
I had been getting a red eye now and again that was becoming bothersome but since it was not infected, my GP suggested I pay a visit to the A&E department at an Eye Hospital.
The moment I walked into the reception area, I sensed just how chaotic it was but patience prevailed and I made sure the receptionist understood I would not be able to hear when my name was being called. He quickly reassured me and said he will make sure they know and if necessary, he would call me too. As I went to find a seat, there seemed to be only one row of seats facing towards the communal area where names were being called out. All the other rows of seats were facing the other way, the wrong way in my opinion. There was also some elaborate hand waving going on, all dedicated to yours truly which I admired and appreciated. After all, their efforts made my heart smile.
My diagnosis after personally researching upon returning home made me stop in my tracks. I had assumed it was something almost trivial yet in the end, without the appropriate medication or specialist care the quality of my vision (in one eye) would have deteriorated. As it is right now – at this precise moment in time, I hope, the “insult” will be contained and eliminated, the quality of vision improving with the help of prescribed medicine and patience. For it is not easy at all, not being able to see or hear very well simultaneously. I now have a much more detailed understanding of what deafblind people may personally feel, and experience. It is extremely exhausting, not being able to lip-read, let alone reading, despite feeling even more vulnerable when outside, exposed to all the elements and the vast lack of awareness in sensory loss be it sight and/or hearing.
Overall, the whole experience is proving to be a good challenge.
People sadly forget just how precious life can be so please, do look after yourselves exceptionally well and enjoy life to the max. For the rest of today, I am going to slumber, cherishing each moment with my children alongside mugs of hot chocolate and some extremely sensual chocolate cake. Hmmm mmmm indeed! Mamma mia 🙂
Carpe Diem – Every day x.
~ SJ (Sara Jae)
A related post; The Next Hurdle