SELFLESS.

I shared this post regarding a deaf blind man the other day, highlighting how *SELFLESS* this young lady was. I was then made aware of a twitter thread posted by Rebecca Cokely, who is apparently an US disability activist.

And so on…. (do read the full twitter thread)

It is somehow expected that airlines (and hospitals) employ appropriately trained staff to assist, especially, those who happen to have communication issues. Otherwise, they, the customers, should not be travelling.

Errrrrmm….

My sister, who has worked for an airline and is highly experienced in customer services, has this to say, in response.

Valid points but if he was happy / confident to travel alone that’s his choice? In an ideal world every flight would have flightcrew representing every spoken language and all means of communication; plus a doctor for any medical emergencies. That’s not going to happen (but technology is becoming advanced enough to help), so second to this ideal it would be nice to think that an airline would be able to include a deafblind communicator crew member on his booked flight, but this would presumably restrict his choice of when he travels (much like only being able to see captioned performances at a particular show twice a year). If this isn’t a reality, it leaves us with the situation we have today, employees and fellow travellers who do the best that they can.

If the concern is primarily consent – there is a lovely video of an interview he (Tim Cook, the man in the viral video) has done –

I also came across this which is the other extreme. Sad to see this had happened –

https://www.edinburghnews.scotsman.com/news/deaf-blind-man-is-hauled-off-easyjet-flight-over-safety-fears-1-4413794/amp

Why is it so hard for people to just let it be? It is, to quote my friend, “miserable shits” in society who make it so difficult, for certain people to get by these days.

A drop of kindness goes a very long way… There is no harm at all, in going above and beyond.

~ SJ (Sara Jae)

 

Expecting Parents.

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With each pregnancy I have experienced (and there have been five of them in total) I have people watched with great interest in the waiting rooms at two different maternity hospitals that I had been referred to, in the past. There have always been a good handful of nervous expectant couples,

Living in such a diverse community, there have also been those who cannot speak English. They just happen to be of another nationality. Myself, I just happen to be deaf. I have however, never seen a translator being provided, for any of these foreign speaking families. They always seemed and seem to be happy enough.

A while ago I noticed a post on social media, by the BBC’s ‘See Hear’ about one of their upcoming programmes, concerning a couple.

The woman is hearing whilst her partner is legally deafblind. They are expecting their first baby but they are unhappy…. The NHS is repeatedly asking the mum-to-be to interpret, for her partner, at HER appointments.

The NHS say that since SHE is the patient, they do not need to accommodate / provide an interpreter for HER partner. Which I think is fair enough, having thought back on all my pregnancies and rifling through my hospital memories. The patients have always come first, regardless of who they happen to be. The dads,, mums, siblings, families and visitors come second, once again, regardless of who they happen to be.. For they are not the patient, it is not their well being, pregnancies or bodies being treated and/or monitored and if they need(ed) support, what is stopping them from arranging their own? Especially if they are otherwise, unsatisfied.

The NHS’s primary concern and priorities, are their actual patients.

Granted, there will be times when a loved one is being operated on and their anxious partners, who may happen to be deaf or a foreign speaking national, will not be able to fully understand, what is being said to them by the professionals. Then, the care system should assist in providing an interpreter or a translator to ensure their patient gets the full care and treatment by their loved ones, as this would mean a full recovery.

Fortunately, I have no complaints at all with each and every NHS experience I have encountered, despite being profoundly deaf myself.

I am more conscious of seriously ill premature babies being born abroad, to parents who are having to pay for incubators, medicine, tests out of their own pockets and on borrowed money. The same people who are having to live hand to mouth, daily. I do not see them complaining one iota for they, do not know how to take things for granted.

~ SJ (Sara Jae)

 

 

At Whose Fecking Mercy, Exactly?

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The other day I was concerned to find quite a passionate post, ranting about being denied the opportunity to watch a captioned screening of a film they particularly and most eagerly wanted to watch. They went as far as to complain to Cineworld because they felt as though they were “at their fecking mercy”. So not my words.

Then I spot an editor adding fuel to the fire by suggesting they write a post about the dispute they were locked in, with Cineworld – for them to publish on their blog. Surely an editor is meant to fact check first? Or are they just desperate for ratings…

These days I do not wish to get involved with anything deaf related because usually, it’s the brutal truth which people know but refuse to accept. They are happy in their dream world, assuming all is against them when the fight to break down barriers are sometimes of their own doing.

This current dispute with Cineworld is unjustified. Because I myself had been following listings not just from “Your Local Cinema” but comparing them with official listings by the cinema companies themselves.

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Why would I accept a third person’s say so? I’m going to double check it and make sure it’s correct or otherwise. This is how I knew Cineworld was not wrong and so felt the need to inform the complainer, of my findings. That actually, ‘Your Local Cinema’ was in fact publishing incorrect listings on occasion and even listed non-existent cinemas. Some of which had long been demolished. I had been checking throughout the holidays as there were and are films we, that my kids and I, would like to see and saw for myself, the inconsistencies.

Double check, the information and yourselves. Try not to be so trigger happy, eh?

~ SJ (Sara Jae)

Dearest Sara,

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Dearest Sara,

Having not put pen to paper for quite some time, I thought I would dedicate this perfect moment to your good self.

The way you fare in life after knocking on death’s door, will be the greatest test to overcome. Simply because, better times await you.

At first, you will not understand why you survived and feel guilty for having done so. As a result, you will appreciate and cherish life, integrity, nature’s designs but most of all, each and every waking moment even more so. At times this may hurt, all because you cannot explain or stress just how precarious life or short, time, is.

Such an experience will benefit you with more wisdom, to see through people, to expand on thinking outside the box and enable you to predict consequences. To recognise better, the evil that’s out there and the many forms it takes.

People will try their best to exploit your kindness for their own gains but you will stand tall courageously and prevail. With their disdain, they will try with all their might to turn others against you. This too, will be in vain.

Whilst life does not come with any instructions, all one can do is listen to our hearts and subsequently understand, what our elders before us, wished. Since history, tends to rhyme.

There will be times when you will feel anxious, such as your precious angels embarking on a life all of their own, anticipating the familiar faces of evil they too, will inevitably encounter. Or quite simply, due to the fact that you survived not once, not twice but three times, that something is bound to happen to you because you, technically, should not be here. Yet, you are meant to be and you will come to understand why.

There will be times when you feel such anger at ghosts of past, who chose to inflict pain and heartache upon you. Alternatively, pure frustration at people’s triviality alone. You will learn, to let it go.

There will be times when you bring sincere meaning to others with just a smile from the bottom of your heart, the kindest word or two and/or gesture – you may not always know it but this will truly make their day. You will come to realise just how vital this can be to someone else, for it’ll save you also.

Grit your teeth, sit on your hands (not too often!), remain the extremely patient, honest and considerate person you are. One who is not afraid to kick ass, either.

Take it one step, one moment, one day at a time.

Not everything is or will be as it seems. You cannot stop the (sound) waves but you can learn to surf so keep on going with the flow, for it suits you so.

Be kind to yourself yet always bear it in mind, that it is okay to say no, that it is okay to be a little bit selfish. To have some “me time”.

Trust in fate since everything and everyone that happens, is predestined. In time, the answers to your many why’s will figure, in all senses.

Don’t be discouraged, don’t be unhappy and don’t be afraid to stay true to yourself, keep the faith in who you are, why you are who you are – you will be more than fine. For you are EXCEPTIONAL, more than you will ever come to realise. You may not always feel it but people do LOVE you, your feistiness even. Those around you consider themselves honoured, lucky today to still, be graced with the pleasure of YOUR company.

With the warmest of love and best wishes, on your birthday.

Your future self,

Sara xx

Ps Never underestimate the power of a written letter. 😉

Lesson Learnt.

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There are those who only show us, what they want us to see.
Be thankful that you can learn, who not to be.
Kindness may not be, what they deserve.
Yet it is a trait, that we should not curb.

🙌🏼

Poet, and didn’t know it 😜

~ SJ (Sara Jae)