Are You One?

Some people be sniffing the walls in Audiology!

Surdusphile.

Surdusphile.

Is someone who has a fetish, a deep obsession with deaf people, deaf culture, deaf devices, sign language, etc, etc.

~ SJ (Sara Jae)

Freedom From Frustration.

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Keeping the Tree House fb group going as a wise friend put it “was a form of self defeatist self abuse.”

I have long since been locked “in an intimidated interaction.”

The damage has been done, by all those who consciously chose to target, to spread slander & manipulative lies, acted on their disdain simply because they could not succeed in playing games with me. They could not get what they wanted which was their own way and my Tree House.

The Tree House fb group is now, closed.

The website however, will remain open to view as a lot of hard work has been put into it. I thank once again, all those who willingly contributed and kindly supported.

By removing myself from the equation, mainly the negativity generated by the offenders of the deaf world, I am now free.

To be me. ☺️

~ SJ (Sara Jae)

When Friends Are Hard To Find…

Oftentimes I find myself praising the NHS yet on this anticipated date, the praise is annually magnified, for 8 years ago my life was saved by a couple of wonderful, experienced and ever so patient NHS surgeons.

It is only thanks to them and the lengthy aftercare that I received subsequently, that I today, fortunately have the privilege to still know you, old friends and new.

When friends (for you) are hard to find, like a bridge over troubled water, I will lay me down.

Wherever there is respect, you’ll find me right beside you.

Your continued friendship is more than enough birthday present. Thank YOU ever so.

~ SJ (Sara Jae)

Be Careful What You Tolerate.

People will always come and go, continuously showing us who not to be. Continuously reminding us, of the level of respect that each one of us so deserves. Regardless of who we may be.

People who know me well, will understand why I reward disloyalty with distance.

I don’t take kindly to people who have one rule for themselves and another for others, nor those who expect to be pandered to.

If one wishes to practise their right to freedom of speech, let me practise mine too even if it differs. Don’t silence me, especially when valid points need to be made and those, I will continue to make.

People have a right to be able to defend themselves, hence a reason for this post.

I am not afraid to kick ass, although, you will not find me kissing any. 😷

To those who have unfriended me, their loss of my friendship, will be and is, someone else’s gain. All water under the bridge.

Social media is continually being used as a tool, to manipulate, to slander, to gossip, to back-stab, to trigger and so on.

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I do not and will not, tolerate it. This is one of the reasons why, I do not let people back into my life. History tends to rhyme.

I know who my true friends are and it is those selected few, who have not left my side.

Next chapter please? ☺️

~ SJ (Sara Jae)

SELFLESS.

I shared this post regarding a deaf blind man the other day, highlighting how *SELFLESS* this young lady was. I was then made aware of a twitter thread posted by Rebecca Cokely, who is apparently an US disability activist.

And so on…. (do read the full twitter thread)

It is somehow expected that airlines (and hospitals) employ appropriately trained staff to assist, especially, those who happen to have communication issues. Otherwise, they, the customers, should not be travelling.

Errrrrmm….

My sister, who has worked for an airline and is highly experienced in customer services, has this to say, in response.

Valid points but if he was happy / confident to travel alone that’s his choice? In an ideal world every flight would have flightcrew representing every spoken language and all means of communication; plus a doctor for any medical emergencies. That’s not going to happen (but technology is becoming advanced enough to help), so second to this ideal it would be nice to think that an airline would be able to include a deafblind communicator crew member on his booked flight, but this would presumably restrict his choice of when he travels (much like only being able to see captioned performances at a particular show twice a year). If this isn’t a reality, it leaves us with the situation we have today, employees and fellow travellers who do the best that they can.

If the concern is primarily consent – there is a lovely video of an interview he (Tim Cook, the man in the viral video) has done –

I also came across this which is the other extreme. Sad to see this had happened –

https://www.edinburghnews.scotsman.com/news/deaf-blind-man-is-hauled-off-easyjet-flight-over-safety-fears-1-4413794/amp

Why is it so hard for people to just let it be? It is, to quote my friend, “miserable shits” in society who make it so difficult, for certain people to get by these days.

A drop of kindness goes a very long way… There is no harm at all, in going above and beyond.

~ SJ (Sara Jae)

 

Expecting Parents.

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With each pregnancy I have experienced (and there have been five of them in total) I have people watched with great interest in the waiting rooms at two different maternity hospitals that I had been referred to, in the past. There have always been a good handful of nervous expectant couples,

Living in such a diverse community, there have also been those who cannot speak English. They just happen to be of another nationality. Myself, I just happen to be deaf. I have however, never seen a translator being provided, for any of these foreign speaking families. They always seemed and seem to be happy enough.

A while ago I noticed a post on social media, by the BBC’s ‘See Hear’ about one of their upcoming programmes, concerning a couple.

The woman is hearing whilst her partner is legally deafblind. They are expecting their first baby but they are unhappy…. The NHS is repeatedly asking the mum-to-be to interpret, for her partner, at HER appointments.

The NHS say that since SHE is the patient, they do not need to accommodate / provide an interpreter for HER partner. Which I think is fair enough, having thought back on all my pregnancies and rifling through my hospital memories. The patients have always come first, regardless of who they happen to be. The dads,, mums, siblings, families and visitors come second, once again, regardless of who they happen to be.. For they are not the patient, it is not their well being, pregnancies or bodies being treated and/or monitored and if they need(ed) support, what is stopping them from arranging their own? Especially if they are otherwise, unsatisfied.

The NHS’s primary concern and priorities, are their actual patients.

Granted, there will be times when a loved one is being operated on and their anxious partners, who may happen to be deaf or a foreign speaking national, will not be able to fully understand, what is being said to them by the professionals. Then, the care system should assist in providing an interpreter or a translator to ensure their patient gets the full care and treatment by their loved ones, as this would mean a full recovery.

Fortunately, I have no complaints at all with each and every NHS experience I have encountered, despite being profoundly deaf myself.

I am more conscious of seriously ill premature babies being born abroad, to parents who are having to pay for incubators, medicine, tests out of their own pockets and on borrowed money. The same people who are having to live hand to mouth, daily. I do not see them complaining one iota for they, do not know how to take things for granted.

~ SJ (Sara Jae)